"When one door closes, another opens; but we often look so long and so regretfully upon the closed door that we do not see the one which has opened for us."
For two and a half years now, we've tried to gather doctors, specialists and therapists around us. A team of experts all focused on Stanton's well-being...a team dedicated to finding answers...people ready and willing to fight for his health. Doors have closed along the way. Roadblocks leading to detours. Telling our story to any doctor willing to listen. Telling our story to doctors not interested. Learning who to push and who not to waste time with. Many miles traveled in a quest for answers and solutions. As 2010 comes to a close I realize that although we still are without many answers, a door has opened for us.~ Alexander Graham Bell
John and I have made the difficult decision to stop trying to develop a "local" team of specialists. It's exhausting and simply not working. I spend all of my "free time" letting laundry pile up as I call every allergist in a 120 mile radius only to learn that they are not familiar with GI related issues nor the elimination diet. I spend hour upon hour making appointments, faxing records, following up with insurance, traveling to appointments, telling our story - only to hear that they don't know....or have considered.....
A team is already in place and waiting to work with us! So, we are Cincinnati bound! Stanton and I will travel back to the Cincinnati Children's hospital in Febraury. We will meet with doctors and have some testing done. Although traveling is difficult - it is the best choice for Stanton for this time. Plus - I feel excited about this choice; like a weight has been lifted off my shoulders! We are now an integral part of a true team! It's taken me two years to stop looking at the closed door....the dream of a local team. But now that my eyes are set on the open door - all I see is hope.
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